Our Voices: A Blog by Links, Callers and Volunteers

Come visit us at www.Sharsheret.org

Monday, August 22, 2011

Your Jewish Genes Joins Sharsheret’s Educational Resource Series

By: Niecee Schonberger, MS, CGC, Genetics for Life Program Coordinator

I’m excited to introduce the newest addition to Sharsheret’s educational resource booklet series. Your Jewish Genes offers up-to-date information about inherited breast cancer and ovarian cancer today and answers the questions that are most commonly asked about this topic in a clear, concise way. The personal stories shared in the booklet touch on many of the aspects of genetic testing faced by women in their journey with cancer and these stories can help guide others during the search toward their own path. As a Genetic Counselor, I love the fact that Your Jewish Genes emphasizes the importance of knowing your family history and taking advantage of genetic counseling before making any decisions. After you read the booklet, I’ll be happy to speak with you and discuss your own concerns or connect you with one of the many peer supporters in Sharsheret’s national network who can share her experience with you. Our Genetics for Life program also provides other informational resources and transcripts of our national teleconferences and webinars, including Prophylactic Surgery For Breast And Ovarian Cancer: How Will It Affect Me? Call us today at 866-474-2774 or visit us online at http://www.sharsheret.org/ to order your free copy of Your Jewish Genes.

Friday, August 5, 2011

Right There Beside You

We're always assuring you - our Team Sharsheret athletes - that we're cheering you on to the finish line. This year, our cheers may sound a bit louder. Ellen, Elana and I will share a relay spot, and Rebecca of our staff will compete in the Triathlon this Sunday. Literally and figuratively, we are doing this together - raising awareness about breast cancer in the Jewish community and welcoming hundreds of new friends to the Sharsheret family. We are grateful that you've chosen to be a part of our Team, and even more grateful that you've chosen to be a part of our mission. On Sunday, when you look around and marvel at all that you've accomplished through training, I hope our thanks, and the gratitude of the thousands of women and families we are blessed to serve, gives you that added push to the finish line. We're cheering you on. And we're right there beside you.

With deep thanks,

Friday, July 29, 2011

Take on our 10-day challenge!

Only 10 days until the New York City Triathlon and our staff members Rochelle, Elana, and Ellen are ready to take on the triathlon as a relay team if YOU can help us get 1,000 new Facebook fans! Tell your friends to "like" our page – www.facebook.com/sharsheret.org - and post your name on our wall as the person who referred them and not only will you and one lucky friend be eligible to win an iTunes gift card, but Elana will swim in the Hudson, Rochelle will ride her bike on the West Side Highway, and Ellen will lace up her sneakers and cross the finish line in Central Park next Sunday!  We're ready to take on the 10-day challenge - are you?!?

Tuesday, July 19, 2011

Helping Us Help You

By: Ruthie Arbit, Sema Heller Netivot Shalom Summer Intern

After 10 weeks of interning at Sharsheret, I can safely say that I went from a state of bewilderment from when I initially heard about Sharsheret in April to a state of admiration. Then, I was struck by the cause; I didn’t know that breast cancer and ovarian cancer were Jewish issues and I wondered what Sharsheret was doing to help Jewish women facing these illnesses. Now, I am in awe as I think about the callers, the peer supporters, and the volunteers who help us at Sharsheret do what we do.

The Sharsheret office is an incredible place. On any given day there is a string of devoted volunteers popping in and out, Team Sharsheret athletes coming in to meet with the staff, and the daily visit by the postman who picks up packages filled with hundreds of breast cancer and ovarian cancer brochures to be delivered to women and families, health care professionals, conferences, and Jewish organizations nationwide. Add all of this to the hard work that the dedicated staff at Sharsheret puts in – providing emotional support to women living with cancer and their families, answering countless questions from health care professionals about the unique needs of their Jewish patients, planning outreach events to spread the word about Sharsheret’s programs and services, coordinating medical symposia, and processing generous contributions from donors. It’s no surprise then that after only 10 years since its inception, Sharsheret has become an esteemed national organization with 11 programs, more than 1,200 peer supporters, and thousands of volunteers and supporters.

However, what impresses me most about Sharsheret are the women. The women who call Sharsheret for support as they ponder the potentially life-changing decision of whether or not to undergo genetic testing, the women who have just finished their final round of chemo and are already volunteering to be peer supporters, and those who are living with metastatic cancer and finding value in every day moments.

All of these women amaze me.

So, as I near the end of my internship, I want to say thank you to the women whose strength fuels the energy of Sharsheret. I am sure that this won’t be the last time I will be surprised by the amazing work of Sharsheret, its staff, and its women. Although my internship is ending, my connection to Sharsheret will remain strong. I look forward to joining Sharsheret’s volunteer force and contributing my time and skills to this wonderful organization.

Monday, July 18, 2011

Meet Team Sharsheret’s 10 Triathletes!

We are excited to introduce Team Sharsheret’s 10 athletes who will compete in the Nautica/NYC Triathlon on August 7, 2011. Our athletes have been training hard for this Olympic Distance Race that includes a 1500m swim, a 40k bike, and a 10k run! Please join us in supporting their athletic and fundraising efforts as they take on this incredible challenge.

Jonathan Blinken
David Bosses
Robert Eisenberg
David Glick
Judah Greenblatt
Mark Levie
Rebecca Schwartz
Talya Spitzer
Max Trestman
Laurie Wechsler Horn

Friday, June 17, 2011

Get in shape with Sharsheret!

Whether you’re an experienced athlete or a beginner, Team Sharsheret has lots of exciting opportunities to help you stay in shape and challenge your athletic abilities. Check out these events and competitions and let us know which one you want to sign up for!
  • Ever dream of running 26.2 miles? Team Sharsheret has slots for the ING NYC Marathon on November 6, 2011! Don’t live in the tri-state area? We offer one round-trip ticket from your U.S. hometown to a NYC area airport! E-mail athletes@sharsheret.org to apply for your slot today and include your name, phone number, and a brief description of yourself and why you want to join Team Sharsheret. For more information, visit Team Sharsheret 2011 ING NYC Marathon.
  • Join award-winning Team Sharsheret at the NYC Race for the Cure, September 18, 2011 in Central Park, NYC. Sign up before July 16th and save $5 at www.komennyc.org/goto/sharsheret2011 and click on the words "Join Team".
  • Team Sharsheret has slots for the now sold out 2012 Ironman US Championship, a 140.6 mile race, to be held in the greater NYC/NJ area on August 11, 2012. This race will be the first ever Ironman competition in the New York City metropolitan area. For more information, e-mail ekleinhaus@sharsheret.org.

Friday, June 10, 2011

From the Cab to the Conference: ASCO’s Annual Meeting From a Patient’s Perspective

By: Rochelle Shoretz, Founder and Executive Director

Each year, thousands of clinicians and researchers convene at the American Society of Clinical Oncology (ASCO) Annual Meeting. Sprinkled among them are patient advocates and patients, like me, who attend sessions so that they can share the latest research with others. This year, I was fortunate to attend the ASCO Annual Meeting in Chicago with a patient advocate scholarship from the Conquer Cancer Foundation of ASCO, and I’m delighted to be able to share research in both breast cancer and ovarian cancer with you.

But first, I need to share a conversation I had with a cab driver on my way to a local outreach event we coordinated for cancer survivors and professionals.

“Let me ask you a question,” the driver began. “There are thousands of researchers and doctors attending this cancer conference, but there is still no cure for cancer. Isn’t this a waste of time and money?”

I’ve heard this question many times before, and I’ve answered it many times before. But this time, I was en route to meet some of our Sharsheret callers living in Chicago, and survivors interested in learning more about our national programs – and the answer seemed more urgent. As I explained to the driver, the research presented at ASCO may not, itself, be the cure for the cancer, but it certainly includes critical pieces to the larger puzzle. And even though that research may not offer the cure today, it is giving most of us living with cancer better quality of life and, some of us, longer lives to live.

I hopped out of the cab and headed into “Cocktails and Conversation”, an opportunity for me to meet with our Sharsheret callers and new women welcomed by our partner organizations in Chicago – Bright Pink, Cancer Legal Resource Center, FORCE, Gilda’s Club Chicago, MyLifeLine.org, and Y-Me. Everyone was buzzing about the conference and the research to be presented that weekend.

For those of us facing breast cancer, the big ASCO news stemmed from a study that showed that post-menopausal women who have a high risk of breast cancer were less likely to develop the disease when they received an aromatase inhibitor called exemestane (Aromasin). That news is important for many of our Sharsheret callers, as 1 in 40 Jews of Ashkenazi descent is at high risk of developing breast cancer (and ovarian cancer) because of a mutation they carry in what is commonly referred to as the BRCA1 or BRCA2 genes. You can read more about the study at http://bit.ly/iLSZuj.

For those of us facing ovarian cancer, scientists at ASCO presented promising research findings from two studies that examined the drug bevacizumab (Avastin) to treat recurrent and newly-diagnosed ovarian cancer. You can read more about those studies at http://bit.ly/iqlc4a.

You can call Sharsheret to speak with a genetic counselor or one of our clinical staff with any questions about these research studies.

As we exhibit and attend breast cancer and ovarian cancer conferences across the country, all of the staff at Sharsheret look forward to sharing our findings with you. Whether our perspectives are gleaned in the cab or the conference hall, we’re proud to be your source of support and information on this journey.

Tuesday, June 7, 2011

Counting Time

By: Shera Dubitsky, Sharsheret Clinical Supervisor

Beginning the second night of Passover until the night before the holiday of Shavuot, many Jews engage in the ritual of the counting of the Omer, the 49 days from Passover to Shavuot. The counting signifies a link between the Exodus from Egypt and slavery to the giving of the Torah and redemption. Every night after sundown, the Omer is recited using unusual terminology. For example we say, “Today is eighteen days, which is two weeks and four days of the Omer.”

As I have been reciting the Omer this year, I am reminded of how I frequently hear the women of Sharsheret counting. “Three more days until my surgery…. One week post-surgery, Three days waiting for my pathology report…. Third treatment in, five more to go….Today is two years post-treatment…. Six months until my next follow-up scan….”

Counting. Everything is carefully measured in time, particularly when faced with the challenges of living with cancer. The counting represents a link between feeling enslaved by cancer and treatments, and the hope for freedom from this disease. And then the counting begins again - but in a new way - “six-month survivor, five-year survivor, ten years since my diagnosis.”

There is another dimension to this counting. Women living with cancer are not merely watching the calendar; we are making our lives count. Every day I hear from women who are strengthening their relationships, not sweating the small stuff, and finding meaning in their lives. Throughout this journey, women are experiencing “aha moments” and they are sharing what they have learned and supporting one another. One caller recently shared that when she was home recovering from surgery, she spent a lot of time sitting with her kids, chatting, laughing, and watching television. These were moments that she would have earlier described as “doing nothing,” because she wasn’t running around doing things with her kids and for the kids. She realized that being still and focused in the simple moment of spending time together, made her feel more connected to them.

As I approach Shavuot, I am grateful to the women and families of Sharsheret for reminding me that it’s not just about counting time, but about making time count.