Our Voices: A Blog by Links, Callers and Volunteers

Come visit us at www.Sharsheret.org

Monday, August 22, 2011

Your Jewish Genes Joins Sharsheret’s Educational Resource Series

By: Niecee Schonberger, MS, CGC, Genetics for Life Program Coordinator

I’m excited to introduce the newest addition to Sharsheret’s educational resource booklet series. Your Jewish Genes offers up-to-date information about inherited breast cancer and ovarian cancer today and answers the questions that are most commonly asked about this topic in a clear, concise way. The personal stories shared in the booklet touch on many of the aspects of genetic testing faced by women in their journey with cancer and these stories can help guide others during the search toward their own path. As a Genetic Counselor, I love the fact that Your Jewish Genes emphasizes the importance of knowing your family history and taking advantage of genetic counseling before making any decisions. After you read the booklet, I’ll be happy to speak with you and discuss your own concerns or connect you with one of the many peer supporters in Sharsheret’s national network who can share her experience with you. Our Genetics for Life program also provides other informational resources and transcripts of our national teleconferences and webinars, including Prophylactic Surgery For Breast And Ovarian Cancer: How Will It Affect Me? Call us today at 866-474-2774 or visit us online at http://www.sharsheret.org/ to order your free copy of Your Jewish Genes.

Friday, August 5, 2011

Right There Beside You

We're always assuring you - our Team Sharsheret athletes - that we're cheering you on to the finish line. This year, our cheers may sound a bit louder. Ellen, Elana and I will share a relay spot, and Rebecca of our staff will compete in the Triathlon this Sunday. Literally and figuratively, we are doing this together - raising awareness about breast cancer in the Jewish community and welcoming hundreds of new friends to the Sharsheret family. We are grateful that you've chosen to be a part of our Team, and even more grateful that you've chosen to be a part of our mission. On Sunday, when you look around and marvel at all that you've accomplished through training, I hope our thanks, and the gratitude of the thousands of women and families we are blessed to serve, gives you that added push to the finish line. We're cheering you on. And we're right there beside you.

With deep thanks,
Rochelle

Friday, July 29, 2011

Take on our 10-day challenge!

Only 10 days until the New York City Triathlon and our staff members Rochelle, Elana, and Ellen are ready to take on the triathlon as a relay team if YOU can help us get 1,000 new Facebook fans! Tell your friends to "like" our page – www.facebook.com/sharsheret.org - and post your name on our wall as the person who referred them and not only will you and one lucky friend be eligible to win an iTunes gift card, but Elana will swim in the Hudson, Rochelle will ride her bike on the West Side Highway, and Ellen will lace up her sneakers and cross the finish line in Central Park next Sunday!  We're ready to take on the 10-day challenge - are you?!?

Tuesday, July 19, 2011

Helping Us Help You

By: Ruthie Arbit, Sema Heller Netivot Shalom Summer Intern

After 10 weeks of interning at Sharsheret, I can safely say that I went from a state of bewilderment from when I initially heard about Sharsheret in April to a state of admiration. Then, I was struck by the cause; I didn’t know that breast cancer and ovarian cancer were Jewish issues and I wondered what Sharsheret was doing to help Jewish women facing these illnesses. Now, I am in awe as I think about the callers, the peer supporters, and the volunteers who help us at Sharsheret do what we do.

The Sharsheret office is an incredible place. On any given day there is a string of devoted volunteers popping in and out, Team Sharsheret athletes coming in to meet with the staff, and the daily visit by the postman who picks up packages filled with hundreds of breast cancer and ovarian cancer brochures to be delivered to women and families, health care professionals, conferences, and Jewish organizations nationwide. Add all of this to the hard work that the dedicated staff at Sharsheret puts in – providing emotional support to women living with cancer and their families, answering countless questions from health care professionals about the unique needs of their Jewish patients, planning outreach events to spread the word about Sharsheret’s programs and services, coordinating medical symposia, and processing generous contributions from donors. It’s no surprise then that after only 10 years since its inception, Sharsheret has become an esteemed national organization with 11 programs, more than 1,200 peer supporters, and thousands of volunteers and supporters.

However, what impresses me most about Sharsheret are the women. The women who call Sharsheret for support as they ponder the potentially life-changing decision of whether or not to undergo genetic testing, the women who have just finished their final round of chemo and are already volunteering to be peer supporters, and those who are living with metastatic cancer and finding value in every day moments.

All of these women amaze me.

So, as I near the end of my internship, I want to say thank you to the women whose strength fuels the energy of Sharsheret. I am sure that this won’t be the last time I will be surprised by the amazing work of Sharsheret, its staff, and its women. Although my internship is ending, my connection to Sharsheret will remain strong. I look forward to joining Sharsheret’s volunteer force and contributing my time and skills to this wonderful organization.

Monday, July 18, 2011

Meet Team Sharsheret’s 10 Triathletes!

We are excited to introduce Team Sharsheret’s 10 athletes who will compete in the Nautica/NYC Triathlon on August 7, 2011. Our athletes have been training hard for this Olympic Distance Race that includes a 1500m swim, a 40k bike, and a 10k run! Please join us in supporting their athletic and fundraising efforts as they take on this incredible challenge.

Jonathan Blinken
    
David Bosses
    
Robert Eisenberg
    
David Glick
    
Judah Greenblatt
    
Mark Levie
    
Rebecca Schwartz
    
Talya Spitzer
    
Max Trestman
    
Laurie Wechsler Horn
    

Friday, June 17, 2011

Get in shape with Sharsheret!

Whether you’re an experienced athlete or a beginner, Team Sharsheret has lots of exciting opportunities to help you stay in shape and challenge your athletic abilities. Check out these events and competitions and let us know which one you want to sign up for!
  • Ever dream of running 26.2 miles? Team Sharsheret has slots for the ING NYC Marathon on November 6, 2011! Don’t live in the tri-state area? We offer one round-trip ticket from your U.S. hometown to a NYC area airport! E-mail athletes@sharsheret.org to apply for your slot today and include your name, phone number, and a brief description of yourself and why you want to join Team Sharsheret. For more information, visit Team Sharsheret 2011 ING NYC Marathon.
  • Join award-winning Team Sharsheret at the NYC Race for the Cure, September 18, 2011 in Central Park, NYC. Sign up before July 16th and save $5 at www.komennyc.org/goto/sharsheret2011 and click on the words "Join Team".
  • Team Sharsheret has slots for the now sold out 2012 Ironman US Championship, a 140.6 mile race, to be held in the greater NYC/NJ area on August 11, 2012. This race will be the first ever Ironman competition in the New York City metropolitan area. For more information, e-mail ekleinhaus@sharsheret.org.



Friday, June 10, 2011

From the Cab to the Conference: ASCO’s Annual Meeting From a Patient’s Perspective

By: Rochelle Shoretz, Founder and Executive Director

Each year, thousands of clinicians and researchers convene at the American Society of Clinical Oncology (ASCO) Annual Meeting. Sprinkled among them are patient advocates and patients, like me, who attend sessions so that they can share the latest research with others. This year, I was fortunate to attend the ASCO Annual Meeting in Chicago with a patient advocate scholarship from the Conquer Cancer Foundation of ASCO, and I’m delighted to be able to share research in both breast cancer and ovarian cancer with you.

But first, I need to share a conversation I had with a cab driver on my way to a local outreach event we coordinated for cancer survivors and professionals.

“Let me ask you a question,” the driver began. “There are thousands of researchers and doctors attending this cancer conference, but there is still no cure for cancer. Isn’t this a waste of time and money?”

I’ve heard this question many times before, and I’ve answered it many times before. But this time, I was en route to meet some of our Sharsheret callers living in Chicago, and survivors interested in learning more about our national programs – and the answer seemed more urgent. As I explained to the driver, the research presented at ASCO may not, itself, be the cure for the cancer, but it certainly includes critical pieces to the larger puzzle. And even though that research may not offer the cure today, it is giving most of us living with cancer better quality of life and, some of us, longer lives to live.

I hopped out of the cab and headed into “Cocktails and Conversation”, an opportunity for me to meet with our Sharsheret callers and new women welcomed by our partner organizations in Chicago – Bright Pink, Cancer Legal Resource Center, FORCE, Gilda’s Club Chicago, MyLifeLine.org, and Y-Me. Everyone was buzzing about the conference and the research to be presented that weekend.

For those of us facing breast cancer, the big ASCO news stemmed from a study that showed that post-menopausal women who have a high risk of breast cancer were less likely to develop the disease when they received an aromatase inhibitor called exemestane (Aromasin). That news is important for many of our Sharsheret callers, as 1 in 40 Jews of Ashkenazi descent is at high risk of developing breast cancer (and ovarian cancer) because of a mutation they carry in what is commonly referred to as the BRCA1 or BRCA2 genes. You can read more about the study at http://bit.ly/iLSZuj.

For those of us facing ovarian cancer, scientists at ASCO presented promising research findings from two studies that examined the drug bevacizumab (Avastin) to treat recurrent and newly-diagnosed ovarian cancer. You can read more about those studies at http://bit.ly/iqlc4a.

You can call Sharsheret to speak with a genetic counselor or one of our clinical staff with any questions about these research studies.

As we exhibit and attend breast cancer and ovarian cancer conferences across the country, all of the staff at Sharsheret look forward to sharing our findings with you. Whether our perspectives are gleaned in the cab or the conference hall, we’re proud to be your source of support and information on this journey.

Tuesday, June 7, 2011

Counting Time

By: Shera Dubitsky, Sharsheret Clinical Supervisor

Beginning the second night of Passover until the night before the holiday of Shavuot, many Jews engage in the ritual of the counting of the Omer, the 49 days from Passover to Shavuot. The counting signifies a link between the Exodus from Egypt and slavery to the giving of the Torah and redemption. Every night after sundown, the Omer is recited using unusual terminology. For example we say, “Today is eighteen days, which is two weeks and four days of the Omer.”

As I have been reciting the Omer this year, I am reminded of how I frequently hear the women of Sharsheret counting. “Three more days until my surgery…. One week post-surgery, Three days waiting for my pathology report…. Third treatment in, five more to go….Today is two years post-treatment…. Six months until my next follow-up scan….”

Counting. Everything is carefully measured in time, particularly when faced with the challenges of living with cancer. The counting represents a link between feeling enslaved by cancer and treatments, and the hope for freedom from this disease. And then the counting begins again - but in a new way - “six-month survivor, five-year survivor, ten years since my diagnosis.”

There is another dimension to this counting. Women living with cancer are not merely watching the calendar; we are making our lives count. Every day I hear from women who are strengthening their relationships, not sweating the small stuff, and finding meaning in their lives. Throughout this journey, women are experiencing “aha moments” and they are sharing what they have learned and supporting one another. One caller recently shared that when she was home recovering from surgery, she spent a lot of time sitting with her kids, chatting, laughing, and watching television. These were moments that she would have earlier described as “doing nothing,” because she wasn’t running around doing things with her kids and for the kids. She realized that being still and focused in the simple moment of spending time together, made her feel more connected to them.

As I approach Shavuot, I am grateful to the women and families of Sharsheret for reminding me that it’s not just about counting time, but about making time count.

Wednesday, June 1, 2011

Get Connected With Sharsheret In Chicago!

Sharsheret Presents Free National Teleconference & Webinar


To access the Teleconference:
Please call (888) 479-6525 at 7:55 p.m. (EDT).
To join the Webinar:

1) Complete the System Check before logging in.
Click or copy and paste this link into your browser address bar: https://www.conferenceservers.com/browser/?brand=conferencesuite

2) Go to: http://www.conferencesuite.com/join.html

3) Complete ALL required fields and click "Log In"
Participant Code: 98387292

Monday, May 16, 2011

Watch exclusive interviews with Sharsheret’s Jewel families

Friday, April 29, 2011

Want To Run The ING NYC Marathon?


DIDN'T WIN A SLOT FOR THE
ING NYC MARATHON ON
NOVEMBER 6, 2011?

TEAM SHARSHERET HAS SLOTS!

E-mail athletes@sharsheret.org to apply for your slot today and include your name, phone number, and a brief description of yourself and why you want to join Team Sharsheret.

For more information, visit Team Sharsheret 2011 ING NYC Marathon.
Help us reach family and friends!
Looking forward to welcoming you to Team Sharsheret.

Thursday, April 14, 2011

A New Take On The Four Passover Questions

By: Shera Dubitsky, Sharsheret Clinical Supervisor

In just a few days, Jews all over the world will participate in the Passover Seder. We will read from the same text, engage in many of the same rituals. Yet each Seder is unique. Every family brings its own traditions to the Seder, how they prepare, who hosts, who takes the lead, and who will clean up the next morning after only a few hours of sleep.

Individually, our Seder experience changes year to year. It is quite amazing how I can read the same story over and over again, yet each repetition highlights different aspects of the story depending on what’s going on in my life at the time. Perhaps this is why we are directed to read this story annually. We are challenged to find new meaning and garner new strength to guide us along the varying milestones of the journey, bringing us out of uncertainty to seder (order).

I imagine that for those of you, like me, who have a family history of cancer, you may relate to those Jews who were debating whether or not to leave Egypt. “Is this a journey that is necessary for me to take or will I be safe enough here?”

For those of you who are diagnosed with breast cancer or ovarian cancer, perhaps you connect with the people who felt rushed to make a decision with limited information and time to prepare as they embarked on their journey to the unknown. “I know that my well-being is in jeopardy in this moment. I am tired. I am scared. How should I push forward?”

Many people who left Egypt survived the splitting of the sea, wandering in the wilderness, and the anticipation of the journey into Canaan, wondered about the challenges ahead. Perhaps their story resonates with those of you who are post-treatment. “I am in awe of everything that I have survived to this point. I have learned so much about myself and my family and friends, but there is that little voice whispering in my ear, what lies ahead for me?”

Family members who have a loved one living with breast or ovarian cancer may relate to Moses’ family, who played an active role in the Passover story. “How can I best support my loved one?”

These Four Questions are just a sampling of the questions we hear at Sharsheret on a daily basis. We receive calls from women differing in age and cultural background. Women call us at varying junctures along their breast cancer or ovarian cancer journey. Although each individual and each family will have its own approach to coping and navigating this journey, Sharsheret is here to help provide seder (order), to share information, and to offer support along the way. As you continue to revisit the Passover story, we encourage you to revisit Sharsheret along your journey. Here you will find renewed meaning and renewed hope.

Friday, April 8, 2011

Celebrating the Big 3-0 With Breast Cancer

By: Ronit Brakha of Memphis, Tennessee, Sharsheret Peer Supporter

November 7, 1998 started out as a very regular Shabbat and ended up being a day my family and I will never forget. I was getting dressed for synagogue when my thumb bumped into something hard on my breast. I ignored it and went on with my day. Later that afternoon, I checked again, and yes, the lump was still there. At that point I told my husband who said he also felt it. Monday took forever to arrive. I made an appointment with the first available doctor in my OB-GYN practice. That doctor said it was probably nothing, to try eliminating chocolate and caffeine from my diet and come back in a month. I was a few weeks shy of my 30th birthday, which is probably why he thought it was reasonable to assume that it was nothing. I made my appointment for the following month and went home. However, somewhere deep in my gut I didn't feel right. I never had cysts and it didn't make sense to me that I would suddenly have one. I called back the next day and got an appointment with my regular doctor. I saw her on Wednesday and she sent me for a mammogram, which came back suspicious on Thursday. I saw a surgeon on Friday and was scheduled for a lumpectomy that Monday.

It was then that I took a deep breath and reached out to the wonderful friends and doctors in my community. I spoke to a friend of ours who is a radiologist and he took a look at my mammogram scans and told me that there was more there than just the one lump. He spoke with a colleague of his, who opened her clinic for me on a Sunday, did several ultrasound pictures, and gave me a hand-written report. She wouldn’t take any money or insurance information. She told me to just go and get better. The next step was an appointment with a surgeon who did a needle biopsy on three different places on my breast. All three came back positive for cancer. On the Friday before my 30th birthday I met with the surgeon who determined that the best course of action would be a modified radical mastectomy. My one request was to get through my birthday first. So my surgery was scheduled for the Thursday after my 30th birthday.

When I was first diagnosed, I didn't know what to do or think or even feel. I was a young wife and mother. I had three beautiful children ages 1, 3, and 5. They needed their mother. What could I do? Where could I turn? I put my name on our community's prayer list. I am the only Ronit in our city, so everyone in the community knew I was sick. That was the best thing I could have done for myself. Reaching out gave me the support and love that my family and I needed to get through this difficult time. I am thrilled to be part of Sharsheret’s national network of peer supporters and provide much-needed support to other young women facing a breast cancer diagnosis.

Thursday, April 7, 2011

My Breast Cancer Journey

By: Evie Kaplan Downing of Wilmington, Delaware, Sharsheret Caller

My journey with breast cancer began on Mother’s Day 2009. I was 28-years-old. While breastfeeding my 21-month-old son, I noticed that my right breast hurt. Instead of feeling the small, firm spot signaling a clogged duct that I expected to find, I felt a much larger lump. I immediately made an appointment with my doctor who was, thankfully, able to see me that day. After she examined my breast, she assured me that she didn’t think the lump was cancerous. Just to be safe, she wanted me to have an ultrasound and a mammogram and probably a biopsy too, but she didn’t think I had anything to worry about. I went for my mammogram a few days later feeling lighthearted and unconcerned. I thought nothing of it when the technician told me that the radiologist needed to speak with me. He explained that my right breast showed large calcium deposits that were “consistent with carcinoma.” Before I knew it, I had an appointment with a breast surgeon. A biopsy showed that the tumor was, indeed, cancerous. I had a lumpectomy and 16 cancerous lymph nodes removed, and then learned I would need a mastectomy. I met with an oncologist who suggested I have genetic testing done because I am of Ashkenazi descent and was diagnosed at such a young age. At the time, I had no idea that being an Ashkenazi Jew put me at higher risk. The test showed that I was BRCA2 positive, so I opted for a bilateral mastectomy. The mastectomy was followed by 5 months of chemotherapy and 4 weeks of radiation, as well as breast reconstruction with expanders followed by silicone implants.

My involvement with Sharsheret began when my mother suggested that I call. I was really touched by how much the clinical staff cared about my well-being. They set me up with a peer supporter who had also been diagnosed while she was still breastfeeding, but at the time, I was still in too much shock over my diagnosis to make the call. After I completed most of my treatment, I began thinking about how I would have to put off having more children and found it very upsetting. Sharsheret set me up with another peer supporter. I realized that I’m not quite ready to face delayed childbearing head-on, but it is comforting to know that when I am ready, there is someone there for me to speak with who has been through this as well. This past December I participated in Sharsheret’s teleconference on prophylactic surgery for breast and ovarian cancer. I found it reassuring to hear women who had undergone prophylactic surgery speak about the pros and cons and about how it had affected them. The teleconference also answered several questions I had about having an oophorectomy.

I will be taking medication for the next five years. I will consider having an oophorectomy before I turn 40 because of my increased risk of ovarian cancer. At the same time, I learned that I am a whole lot stronger than I knew. I learned what an amazing group of friends I have. My husband and I realized how much we really mean to each other and that we really do want to spend the rest of our lives together. It has not been an easy journey, but I have learned a lot about myself and the world. I would never wish breast cancer on anyone, but I would also never take back my experience.

Wednesday, April 6, 2011

You’re Too Young To Have Cancer

By: Marcia Donziger of Denver Colorado, Sharsheret Peer Supporter

I was 27 and thought I had a bladder infection. It turned out to be a tumor on my right ovary. At first, my gynecologist was not concerned. “Could it be cancer?” I worried. “No,” she replied, “You’re too young to have cancer.” I was married and trying to get pregnant at the time, so I scheduled surgery immediately to get it over with. The doctor assured me the worst that could happen is I’d lose one ovary and I would still be able to have children. She was confident the tumor was benign.

On the day of my surgery, I was wheeled into the pre-op room. That’s when the medical assistant approached me with a legal form to sign, agreeing to the potential of having a hysterectomy. My doctor and I never discussed this. Five hours later, the surgery was over, and I was in the recovery room. I was in a lot of pain. That’s when my doctor broke the news. “I’m sorry, but you have ovarian cancer. We had to do a complete hysterectomy.” Through the pain I heard, “You have cancer. You can’t have children.” The irony was that my doctor was six months pregnant. Her belly at my eye level made me feel even more devastated.

Stage IIIc ovarian cancer spread throughout my abdomen. I faced infertility, followed by a bowel obstruction, and six months of chemotherapy. One of the things I struggled with most was keeping friends and family up-to-date with what was going on. I felt the daily burden of not communicating effectively with those I loved who were so concerned. In 2007, I founded a non-profit organization to help all cancer patients and caregivers easily communicate with friends and family during the treatment process. MyLifeLine.org Cancer Foundation believes a strong support community is critical for cancer patients. We provide free, personal websites to cancer patients and caregivers so they can easily connect with family and friends, because no patient should ever feel alone.

The other major difficulty I dealt with was not knowing anyone else my age with ovarian cancer. The average age of diagnosis at that time was 61 and I was 27. The worst side effect was infertility and I couldn’t find anyone else who could relate to me. For this reason, I am so proud of Sharsheret for developing a peer support program for young, Jewish women living with ovarian cancer. I am excited to be a peer supporter and share the important message with other young women facing ovarian cancer that there is light at the end of the tunnel, and there are fertility options.

Today, my husband and I are the parents of twin boys, age 5 ½, who were born with the help of an anonymous egg donor and surrogate mom. Becoming a mom was the final piece to my healing, and I look forward to helping other young ovarian cancer patients through Sharsheret.

Tuesday, April 5, 2011

Pregnant With Breast Cancer

By: Michelle Rosch of Naperville, Illinois, Sharsheret Peer Supporter

On February 18th, 2008, two weeks after my 27th birthday and eight months into my first pregnancy, I was diagnosed with Stage III breast cancer. Due to the aggressive nature of my cancer, I delivered my son, Aiden, a month early and had a double mastectomy with reconstruction one week later. The doctors informed me that I was estrogen positive and would risk the cancer returning if I had any more children. My wonderful sister-in-law, April, offered to carry my next child, so I immediately started receiving daily hormone shots to harvest my eggs starting a week after my surgery with just three weeks to finish the process before I started chemotherapy.

During the summer of 2008, I received six chemotherapy treatments every three weeks for four months. After 18 days I started losing my hair, so my husband, Mike, and I decided to shave our heads. I shaved his head and he shaved mine. We actually laughed and had a fun time doing it! I bought a few wigs but only wore them for weddings. I was most comfortable wearing a cute scarf, especially since it was so hot outside. After chemo, I had 7 weeks of daily radiation. The radiation made me feel tired and my skin felt like I had a bad sunburn, but it was very tolerable compared to the side-effects of chemo.

As 2009 began, I had a preventive hysterectomy and had my first breast reconstruction surgery 3 weeks later - all before Aiden's first birthday. I accomplished so much in a year and it felt nice for the first time to view myself as a strong and brave person. I especially loved my new short hairstyle! Over the next year I had my last reconstructive surgeries and here I am today, 3 years later. I'm healthy, happy, feeling great, and loving life!

The most important thing for me to do is give back and make a difference in the lives of other women living with breast cancer. Volunteering for Sharsheret as a peer supporter has been such a positive part of my life. I remember what a difference it made for me to have support from other young survivors and I am happy to give back in any way I can.

Monday, April 4, 2011

Breast Cancer For My 26th Birthday

By: Shira Gross of New York City, Sharsheret Caller
 
On the drive back to Manhattan after an incredible birthday getaway weekend, I received a phone call that would change my life forever. “Your pathology came back positive for Invasive Ductile Carcinoma.” I was diagnosed with breast cancer on my 26th birthday.

That following week was a blur comprised of doctor shopping, crying, reading scary things online, questioning my faith, etc. Before I had a second to breathe, I was at the hospital getting a core guided MRI biopsy of two other “questionable” lumps in both breasts. In my periphery I see the stoic and stoney-eyed technician who immediately became sympathetic when I started to cry. She asked me, "Are you familiar with King Solomon?" She then shared with me a snippet from his life. He wore a ring that said, “this, too, shall pass” and he would look to his ring during tough times. She told me to be brave like King Solomon and that I would get through this.

“This, too, shall pass” really became a mantra for me throughout this experience – despite how cliché it sounded at the time. I knew I would get through my lumpectomy and return to work just a few days later. I knew I would get through four rounds of chemo and losing my hair and social life, and now I’m even able to go out in my wig and still get approached at a bar and I got promoted at work! And ultimately, after having a change of heart, I knew I would get through my bi-lateral mastectomy and somehow resort back to a somewhat normal life.

I am very grateful for finding Sharsheret and being connected with a peer supporter who I can call with any questions. As a young woman with breast cancer, there were many issues that I faced that I did not feel comfortable speaking about with most people. Fortunately, Sharsheret introduced me to another young woman who provided me with incredible support.

I thank G-d that I caught this myself so early and that I am a survivor! Sometimes we get caught up in challenges and cannot see through, but we can draw strength from knowing that “this, too, shall pass.”

Tuesday, March 22, 2011

AEPi Israel Goes Pink!

By: Tal Weiss, Philanthropic Chair, AEPi Aleph Colony

I am proud to be a part of the Aleph Colony of the Alpha Epsilon Pi fraternity’s (the first fraternity in Israel) inaugural event in support of Sharsheret. Last night, our chapter presented Pink!, a Cabaret-style benefit concert to promote breast cancer awareness and empowering women. We hosted the event at the Interdisciplinary Center (IDC) in the city of Herzliya. A trio of amazing IDC women, Ilana Gindis, Saphira Tessler, and Naomi Winkler, dazzled the audience with awe-inspiring renditions of contemporary Broadway and Cabaret songs. In a first-ever collaboration between AEPi chapters in Israel and the United States, the show will be broadcasted live to select U.S. universities and will also be available via live stream following the event. Thanks to everyone who helped make this incredible event possible. We are excited to work with Sharsheret, in what we know will be the start of a very long collaboration.

Watch the Pink! concert now! http://www.ustream.tv/channel/pink-a-benefit-concert 

Friday, March 18, 2011

Starting For You, Finishing For Us

By: Rochelle Shoretz, Sharsheret Founder and Executive Director

Dear Heather, Janine, Tami, Natalie, Alyse, Aviva, Penina, Alexa, Melanie, and Amy,

You must be excited. I’ve heard about your training, the months of stretching and practice runs that you’ve plowed through to finish the NYC Half-Marathon on Sunday. You’ve been comparing athletic gear, finish times, running techniques. Many of you are competing for the first time, proving to yourselves that you can take on this challenge. Others have competed before, proving to yourselves that you are stronger and faster than in years past. On Sunday, you’ll stand at the start line with a rush of adrenaline about the personal challenge ahead.

But at the end of your run – when you cross that finish line – you will have raced for us, the women and families of Sharsheret. We will be there – patients and survivors – to say thank you for all you have done to support our journey through breast cancer and ovarian cancer. We will be there – mothers, fathers, sons and daughters – to say thank you for the funds you have raised for the programs that make life so much better for those we love facing cancer. We will be there – friends, community leaders, doctors and nurses – to say thank you for raising awareness about the impact of breast cancer on our Jewish community.

So run your best race for you. We’ll be there at the finish line to say, “Thanks. We know you did it for us.”

Best,
Rochelle

Thursday, March 17, 2011

Queen Esther’s New Normal

By: Shera Dubitsky, Sharsheret Clinical Supervisor

On Purim, we read the story of Esther. After the King of Shushan banishes his queen for disobedience, a beauty contest is held to find a new queen. A lovely young Jewish woman named Esther is selected as queen, reluctantly. Esther has no choice but to accept her new circumstances. Upon entering the kingdom, she finds herself in very unfamiliar territory. She chooses not to disclose her Jewish identity. In order to survive, Esther struggles between holding on to her sense of self and her values and needing to make choices that are outside of her comfort zone. She needs to embrace the new normal. Esther realizes that she does not have to face these challenges alone – she turns to the Jewish community for strength and support and ultimately, together they find reward and victory.

When a woman is diagnosed with breast cancer or ovarian cancer, she finds herself in very unfamiliar territory, reluctantly. She learns a new language of tumors and treatment. Her body changes due to surgery or medical side effects. She may choose not to disclose her diagnosis publicly. She may not know what her life as a survivor looks like.

Living with cancer and surviving cancer means living outside of your comfort zone, at times. Your challenge is to embrace the new normal. Like Esther, you don’t need to experience this in isolation. We learn from Esther that collectively we can be stronger than any one of us is individually. By turning to Sharsheret, you find a Jewish community of women and their families, health care providers, and spiritual leaders and the experience is rewarding. Drawing from the story of Esther, we celebrate the strength of women and the incredible support of the Jewish community. Wishing you a very happy Purim from all of us at Sharsheret!

Tuesday, March 1, 2011

Only A Few NYC Triathlon Slots Left!

"Race Day was truly amazing! Training and racing with Team Sharsheret took me on a life changing journey. Thank you from the bottom of my heart."
- 2010 Team Sharsheret Athlete

Looking to compete in an elite Triathlon event this Summer? Team Sharsheret only has a few slots left for the 2011 Nautica NYC Triathlon on August 7! APPLY NOW by sending an e-mail to athletes@sharsheret.org with your name, your phone number, and a brief description of who you are and why you want to join Team Sharsheret.

We:
· Provide a coveted slot in the now sold-out Triathlon, race registration, and related fees
· Dress you in official Triathlon gear
· Offer bike training in New York's Central Park and Northern New Jersey, as available
· Can arm you with online running, swim, and bike training routines
· Surround you with athletes who will motivate and inspire you to reach the finish line in support of this important cause

You:
· Agree to raise a minimum of $5,000 for Team Sharsheret to support our national programs (We make it easy, with personalized pledge pages on Sharsheret's website!)
· Notify friends and family of your participation in this year's Triathlon
· Have the competitive experience of a lifetime

For more information and to apply now, please e-mail athletes@sharsheret.org with your name, your phone number, and a brief description of who you are and why you want to join Team Sharsheret.

Please feel free to share this with a friend.

See you at the finish line!

Monday, February 14, 2011

Celebrate Purim With Sharsheret!

Celebrate this joyous holiday with Sharsheret Purim Cards! Our festive Purim Cards are a wonderful way to send best wishes to your family and friends, both near and far. Sharsheret Purim Cards come in packages of 12 for a contribution of $36, with an additional charge for shipping and handling, or you can pick them up at our Teaneck office. To order online, click here. Sharsheret Purim Cards are also available for purchase at The Judaica House, 478 Cedar Lane, Teaneck, NJ.

Join in our 10th Anniversary National Campaign and tell 10 friends to purchase Sharsheret Purim Cards.  Share this blog post with 10 friends now!

Tuesday, February 8, 2011

How Do You Wear Pink?

Our staff celebrates Pink Day! Top (l to r):
Ellen, Rochelle, Elana, Julie, and Sari.
Bottom (l to r): Rebecca, Shera, and Adina.
By: Tzvi Solomon, Sharsheret Volunteer

Tomorrow, thousands of “soldiers” from 68 schools across the globe will march together. Our army has soldiers stationed in high schools, day schools, college campuses, yeshivot, and seminaries. We like to call ourselves pink soldiers. We are an army that is ready to make a difference. We are an army that is here to show Jewish women and families affected by breast cancer that we stand by them. Our soldiers understand that when one person is hurting, we are all hurting. People may look at us and think that we serve as their hope and inspiration. However, those affected by breast cancer are our hope and inspiration. They inspire us to never give up the fight, to always keep going, and of course, to unite together in the battle against breast cancer. Join us for Sharsheret’s 2nd Annual Pink Day Worldwide and wear pink tomorrow - to school, work, around the house, or at the gym. Join our army of pink soldiers and show your support for Jewish women and families facing breast cancer.

Join Sharsheret's 2nd Annual Pink Day Worldwide tomorrow, Wednesday, February 9th!

Sharsheret's Pink Day Worldwide, launched last year by students on high school and college campuses across the globe, empowers students to educate their peers about breast cancer in the Jewish community and Sharsheret's national programs.

3 easy ways you can join Sharsheret's Pink Day Worldwide:

1. Rally your co-workers, family members, and friends - Ask them to wear pink tomorrow, take a "pink" group photo, collect $5 from each participant, and donate to Sharsheret.

2. Become a Sharsheret Facebook Fan - Change your status to: "February 9th is Sharsheret's 2nd Annual Pink Day Worldwide. Do you have your Pink on? Post this status in honor of Jewish women facing breast cancer." If you took a Pink Day photo, upload it to our page!

3. Donate online - Make your Pink Day donation online at www.sharsheret.org/payonline.php and choose Pink Day 2011 in the drop down menu.

For more information, contact Sharsheret's Program Manager and Campus Liaison Ellen Kleinhaus at ekleinhaus@sharsheret.org.

Thursday, January 20, 2011

Save The Date: 10th Anniversary Benefit

Naomi Kanovsky
Marcie Cappell
Join us at Sharsheret's 10th Anniversary Benefit, Sunday, May 15, 2011 at the Marriott at Glenpointe in Teaneck, New Jersey, featuring renowned singer and songwriter Neshama Carlebach. We will recognize the valuable contributions of Guest of Honor Naomi Kanovsky (Englewood, NJ) and Lisa Altman Volunteer Tribute Award recipient Marcie Cappell (NYC). The 10th Anniversary Benefit will also feature "Sharsheret, Changing the Face of Breast Cancer," a photo exhibit by acclaimed photographer Gail Hadani and a silent auction with valuable items including electronics, jewelry, Judaica, sports memorabilia, and gift certificates.

For more information about the 10th Anniversary Benefit and sponsorship opportunities, please e-mail events@sharsheret.org.


Tuesday, January 11, 2011

Sharsheret Teleconference Explored Prophylactic Surgery for Breast and Ovarian Cancer

You can now listen to an audio recording of Sharsheret’s national teleconference, Prophylactic Surgery for Breast and Ovarian Cancer: How Will it Affect Me?, recorded on December 22, 2010. The teleconference featured acclaimed author Dina Roth Port (Previvors: Facing the Breast Cancer Gene and Making Life Changing Decisions), personal stories about the impact of prophylactic surgery on personal and family life shared by Sharsheret Peer Supporters, and Sharsheret’s Clinical Supervisor, Shera Dubitsky, MEd, MA, who discussed the psychosocial and physical side effects of prophylactic surgery for breast and ovarian cancer.

The teleconference was made possible with generous support from The Gorlin Family Foundation, Julius and Emmy Hamburger Memorial Fund, and Stephanie Sussman and Ann Nadrich Memorial Fund.

Listen to Sharsheret’s National Teleconference, Prophylactic Surgery for Breast and Ovarian Cancer: How Will it Affect Me?, share your comments, and read comments posted by other listeners.


Tuesday, January 4, 2011

How Continued Surveillance Saved My Life

By: Sally Cotlar, Sharsheret Peer Supporter

I had just turned 6 when my mother died of breast cancer at the age of 35. Breast cancer has always been part of my universe. I even had my first mammogram when I was only 23 years-old. It wasn't until many years later that I found out that I was also at risk for ovarian cancer.

After doing some family research and learning that my maternal great-grandmother died of breast cancer at the age of 51, I decided to undergo genetic testing. I tested positive for the BRCA1 mutation. Although I was disappointed with the result, I wasn’t surprised because my mother was so young when she had cancer, but my geneticist thought I would be negative. When I asked her why, she said, "because you have not had cancer yet”. Over the next weeks and months, the impact of learning that I carried the mutation increasingly weighed heavily on me. I was concerned about my future as well as those of my three children, who each have a 50% chance of inheriting the mutation. Over the years I have learned to accept the possibilities and I try to be as proactive as possible.

I had a prophylactic oophorectomy (removal of the ovaries) and removal of my fallopian tubes. I was happy to not have to worry about developing ovarian cancer. Two years later, I was feeling great and decided that it was time to have a prophylactic mastectomy. I really wasn't looking forward to the surgery, but thought I would be relieved to not have to worry about breast cancer as well. During my pre-operative physical, my doctor found a large, hard lymph node in my inguinal canal (the crease between the leg and hip). It was diagnosed as primary peritoneal cancer, which is essentially ovarian cancer. I couldn’t believe I had cancer because I felt so good and had what I thought would be preventative surgery. Unfortunately, prophylactic oophorectomies don't prevent ovarian cancer 100% of the time because the lining of the peritoneal cavity, where the ovaries sit, is similar to the lining of the ovaries.

I have been in remission since 2003 and I have never had breast cancer or a mastectomy, although I am again considering the mastectomy. What I've learned from having cancer is that it is life-changing. It’s as if you have entered into another world, a world filled with new terms, doctors, tests, scans, and often, surgery and chemotherapy. On a positive note, there is also a new community you have become part of. I have met so many wonderful people who have enriched my life and made me a stronger and better person. Joining Sharsheret and speaking with a Peer Supporter can help unravel the mysteries involved with ovarian cancer. I look forward to serving as a Sharsheret Peer Supporter and speaking with those touched by ovarian cancer so that I can share the hope and knowledge that I was blessed to receive during my cancer journey.